Reflex Sympathetic Dystrophy Syndrome (RSD)

Reflex Sympathetic Dystrophy (RSD), is a very painful and disabling disease that affects an estimated 7 million people in the United States. Since it is little understood, RSD is often misdiagnosed and therefore not properly treated.

Medical Information:

  • Harvard Medical School RSD Info - Reflex sympathetic dystrophy syndrome is characterized by severe, constant, burning pain in the affected limb. The lightest touch over the limb, even a brush of clothing or a breeze, can be excruciatingly painful.

Organizations

  • Aware-RSD - Awareness, information, support and friendship for all who have RSDS / CRPS (Reflex Sympathetic Dystrophy Syndrome / Complex Regional Pain Syndrome. Non Profit. Frequent chats, active message boards, and current information and news. Chronic Pain support as well for all types of conditions. Also offering a private support group for members.

  • Reflex Sympathetic Dystrophy Association of California - A non-profit corporation comprised of individuals dedicated to promoting education in the medical condition known as Reflex Sympathetic Dystrophy Syndrome (RSD), to render assistance to those people who suffer from RSD, and to assist groups or research facilities in an attempt to develop effective diagnosis, treatment and cure for Reflex Sympathetic Dystrophy and all Complex Regional Pain Syndromes (CRPS).

  • RSD Hope - A non-profit group made up of patients, parents and friends whose mission is to spread information about RSD to anyone and everyone who asks or will listen. Based in Maine, providing national and international support. They are not medical professionals and do not offer medical advice. Also known as the Maine RSDS Patient Advocacy Group.

  • RSD Victims Support Group - An online support group for all victims of Reflex Sympathetic Dystrophy, a devastating disease that changes the lives of all those it comes in contact with.

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